Saturday, March 20, 2010

Um, didn't you have chemo or something?


I kick myself for not appreciating every single day of my childhood that this was the view from my bedroom window. (Usually there's only one sun...hopefully my photography skills will improve.)

Day two and other than a metallic taste in her mouth (which could be from either the chemo or the cancer), my mom is showing no big signs of illness. We even went on another walk today (though she doused herself in sunscreen and I made her wear a hat since chemo makes people more sensitive to the sun). I have read that some people don't get sick until several days after treatment but I've decided she's going to be one of the rare few who only experience mild fatigue. The oncology nurse said that if she was going to get nauseous it would likely start up in the first 24-48 hours after treatment, so hopefully she's dodging that bullet. She also said it's possible that my mom's hair will only thin versus falling out completely with the particular chemo cocktail she's on. I'm starting to wonder what will happen.

My mom is getting frustrated with the no sugar/no flour plan we have her on (I'd like to ban bread on the whole but she doesn't seem agreeable to this) and I'm not wavering. It's like dealing with a teenager. I keep thinking, "You can be mad at me if you want to be but I know what's best and I'm doing this because I love you." (I don't remember my mom saying that to me even once when I was a teen but then, as I remember it, I was the perfect child.)

So, the day was relatively normal and, dare I say, uneventful? Actually it was uneventful in terms of cancer, but in terms of life, it was great. I spent a couple of hours having birthday cake and tea with my sister and nephew tonight, a chance I don't often get. And earlier, I even went on an invigorating motorcycle ride with my dad through Tiverton, a beautiful town that sits across the river from my parents' home. My dad and I had a a cup of coffee at a sweet little spot that sits right on the river and watched the sun sparkle over the water, this time from the west. Witnessing the sun rising and falling over the same river, watching my nephew blow out my sister's birthday candles, seeing my mom enjoy a cup of green tea on her porch in the fresh spring air; tonight, I feel nothing but gratitude.

First day of spring: Drink, l'chaim, to life!

Friday, March 19, 2010

Pushing through


I didn't even look right before gassin' it through the puddle. This could have ended very badly.

So, the cars are okay, the apartment is fine and the only signs left of the lake that was our road, yard and driveway is debris that washed up, marking the high tide point. Dan and I went back on Wednesday to check on the cars and though there was still a pond in our driveway (such that we had to ask our neighbor with the high rubber boots to check our mail) I was able to charge the ol’ Subaru Outback out of the driveway so that we could return the rental car. (A Chevy with manual windows and locks, by the way. “How do you lock this thing? What do you mean I have to just push the button down?”).

When we walked into our apartment on Wednesday I was suddenly so overwhelmed by all the life-in-order tasks that needed to get done that I disappeared for 15 minutes into a silent stress attack. Our bills---stacked in scattered piles around the apartment---needed to be paid. In the rush before the evacuation I had thrown our laundry all over the bedroom and the rest of the apartment while packing my suitcase. (Most of it had been in laundry bags and baskets anyway, having not been put away in weeks.) The entire place needed a douching---floors vacuumed and washed, bathtub scrubbed, etc.---never mind that thing called spring cleaning. Plus, I knew I was heading down to RI the next day (Thursday; I am there now) so I had to organize and pack everything up once more before loading the car again. As we stood there, the smell of dampness still in the air despite the beautiful sixty-something degree day outside, I froze, unsure of where to begin and feeling just completely seized up by all that needed doing. In these moments, I can barely talk. (Dan told me later that he wanted to slap me across the face a la Cher and say, “Snap out of it!”)

And it was, of course, ultimately Dan who did get me to snap out of it. Seeing my sudden tension and unease, he said, “Let’s pretend we were never here and stay at the hotel another night.”

I hesitated, feeling like a night at home could be so productive but also disheartened that I was no longer homeless and thus could not take a day of writing outside in the sun, to be my only choice. Plus, Dan and I had both been looking forward to our rowdy St. Patrick’s Day plan of take-out and American Idol in the hotel room. It was also our last night together for an undetermined length of time since my mom started chemo today and I’ll be staying down here for a bit to see her through it. We knew we could either spend that last night together having fun or with me frantically whipping around the apartment trying to do seven things at once and ultimately failing to really complete even one.

“Come on,” Dan said. “Let’s pretend we never came home at all. We’ll have a fun night at the hotel and then I’ll get all the stuff around here done this weekend while you’re in Rhode Island. Let’s go back to our FEMA trailer and enjoy our last night together.”

And so I went with it, knowing that this was exactly the right choice to make. Though we could have probably stayed at our apartment, we shelved all that needed doing and from a bed that had been made by someone other than us, we watched TV on a set that carried all the channels we don’t have at home. Needing a break from reality, we played pretend for one more night.

And now back to reality we are.

Today was, indeed, my mom’s first day of chemotherapy. I packed a cooler of food, threw Travel Scrabble in my backpack and readied for the worst. The outcome? The best. (Well, the best as far as mestastatic lung cancer is concerned.)

The chemotherapy room had two rows of paper-lined La-Z-Boys running along each wall. It’s like a little cancer community where people sit, get their chemo administered either intravenously as my mom did or through a catheter, and hang out. My dad and I went in first while my mom had her vital signs checked. As we walked in the room, I was surprised to feel fear. There were three people already in their recliners and each one was very thin and very sickly looking. It was not the stuff of those brave women out in the world with their beautiful bald heads or colorful scarves; the image of cancer I have taken comfort in. These people were very, very ill and the fear of my mom becoming this sick made me nauseous on the spot.

And then she joined us in there and the laughing began. My dad asked my mom if she preferred a private room as one was available but, as he anticipated, my mom rather be with everyone else taking in the scene and making friends. (My dad and I both agreed we were the private room type though I can only speak for myself when I say that my desire for privacy seems to serve me less than my mom’s social nature serves her.) The woman connects with people. Within two minutes of meeting the oncology nurse, she was recounting to my mom the details of her husband’s affair, their divorce and how the kids are taking it. This nurse was lovely as were all the others we’ve met along the way. (I love nurses. If any group of people is saving this world, my money’s on them. If I could handle bodily fluids of any kind and I didn’t hate people so much, I’d almost want to be one.)

And then they hooked her up and it began. We took pictures as soon as it started. My parents on the first day of chemo. Gig with her IV drip. We cracked ourselves up. And when a nurse came and placed a large tray of delicious looking bagels and muffins in front of my mom, whom we’ve got on a torturous no sugar/no flour diet, we only laughed harder.

At one point my mom said, “This is a really great experience.”

To which my dad responded, “This isn’t Disney, it’s chemo.”

And then four hours just somehow passed. We didn’t even get a chance to read our books.

My mom felt great for the rest of the day. Like, freakishly great. They gave her a steroid to protect her from a possible allergic reaction and she attributes her zest to this. She’s a little Wonder Womanesque right now. I’m pretty sure she could lift a car. She got home and called all her friends and family and laughed about her “great experience,” we went for a nice walk in the sun, and she even handled all the requisite billing issues and phone calls that come with all this medical intervention (‘cuz who doesn’t want to call a hospital billing department on her first day of chemo?). My dad and I marveled at how a person could possibly feel that happy after her first dose of chemotherapy.

Dan and I talked tonight about how with all that you hear about chemotherapy---it’s pretty commonplace these days---you never really know exactly what the experience is. You hear about vomiting and hair loss. Low immune system and fatigue. But I’ve never heard about the experience firsthand; what it’s like that first day, how soon the symptoms start, etc. And though I had no idea what today would bring, I had not even pondered the possibility that she might come out of the hospital feeling fantastic.

The steroid will wear off though and tomorrow may be a different day. When my eldest sister was nine-months pregnant with her son and about to blow, having never been pregnant before she said that waiting for labor to start was “like waiting for a car accident.” It was imminent and it was huge, she understood, but she had no idea when it was coming.

That’s sort of how this feels now. My mom is going to get sick. You can‘t put poison in your body and avoid that. But whether it’s nausea or vomiting or headaches or mouth sores or pain that are coming, none of us know. Will she be able to eat tomorrow? Or will it be three more days until it kicks in? How heavy is the tiredness of chemo? How will it feel? If I am so consumed by all these questions, what must be going through her head? Is she going to bed tonight wondering if her body will be her own tomorrow? How strange that must be.

And how is she always laughing? At every appointment we’ve gone to, as my mom has checked in and my dad and I have taken our seats in the waiting room, he and I have shared a smile after hearing my mom erupt into laughter with whomever was manning the front desk or clerk’s window that day. It doesn’t matter the person, the setting or, apparently, the scenario, the woman can find the laughter.

No steroid could do that.

P.S. Happy Birthday, Mattie. I remembered on my own (with a little Facebook assistance, I’ll admit...and don’t pretend like you know exactly when my birthday is either), but this is the e-mail I got from Dan today:

By the way, and before you go “I know when my fucking best friend’s birthday is douche!” I wanted to let you know today is Matty’s b-day. I only tell you this because I think for the last eight years you always pop up and go “FUCK! IT’S MATT”S BIRTHDAY!” So I am only helping.

My gift to you? Permission to leave me a nice, lengthy drunken message at 3am. Please include a musical number, if possible. Happy day, love.

Tuesday, March 16, 2010

First of all, I'm alive.


The view from my window yesterday.



(Photo by Rich Beauchesne of Seacoast Media Group...I wonder if I need permission to use this...) The view from a photographer much closer to the action. That's our house in the background. Our apartment is in the front on the first floor. In fact, the window on the far right is our bedroom window and at this exact moment I was standing there taking pictures of this scene. (Shot through the trees, they weren't worth posting.) I swear you can almost see stalker-me standing there.

It is hard to believe, sitting outside as I did on this beautiful, sunny 50-degree day, that I was evacuated by boat from my home yesterday. After I posted about the adventure we were about to embark on---'Cuz what else does one do in times of crisis? Well, Dan booked a hotel and rented a car.---I started going through my suitcase trying to decide A) How much luggage one is allowed in a boat evacuation (Do I get a carry-on?) and B) Should I pack my cowboy boots? I fit everything---no boots but I managed a blow dryer and our tax forms (in the hope that I will get our taxes done while homeless; though I forgot about the great distraction and wonderful hotel perk that is HBO)---into a small rolling suitcase and a green North Face backpack which I shoved into two garbage bags so that my laptop wouldn't be damaged by rain (or the raft flipping).

I rarely see my neighbors but as we all stood out in the rain together like kids at the busstop waiting to be rescued , we finally introduced ourselves.

This is Alice.

(Photo by Rich Beauchesne)

I watched them put her onto the boat this way as well. (Dan joked that he opted for the over-the-shoulder fireman carry when it was his turn.) Alice and I didn't formally introduce ourselves but I always say hello to her when I see her and she pretty much never responds (which, as a measure to protect my self esteem, I tell myself is because she's a little deaf).





This was the boat (at the end of our long driveway) that came to our rescue. Our neighbor Amanda, Dan and I were on the third trip. Dan joked to his sister that we knocked over an old lady to get on. (He also said I just stood there playing my violin...He also said that we should make signs that read, "George Bush hates black people." He was on fire, you see.) The firemen (who were adorable) joked about taking us on a cruise. "If you look to your right, you'll see your next door neighbor's porch." Back at the fire department (where we were taken by ambulance after disembarking and wading through a foot of water to dry land) we heard one of the guys over the radio say, "We're gonna need bigger boots." The whole thing was pretty comical and was only made funnier today when we read that only 12 people from our street were evacuated, most of whom were from our apartment building. (Dan calls us the Exeter 12...like the Oceanic Six. A joke for the Lost fans out there.)

You know what won't be funny though? If our house gets robbed because the newspaper printed our actual address in the paper when mentioning the evacuation. I can see Home Alone's Joe Pesci and Daniel Stern rubbing their hands together now. They might as well have written, "Wanted: Burglar to rob big ol' empty 10-apartment house. Must have own canoe and clean boating record." I told Dan that I'm suing if we get robbed. (My most valuable possession? Tivo.) You know what else won't be funny? If our cars have water in their engines or float away completely.

Never let go, guys!

You can't help but have perspective on all of this, with all of the work that is still going on in New Orleans since Katrina. We were never in real danger. (I actually was thinking we should stay---"We've got a frozen lasagna in the fridge. We'll make it!"---but Dan said we'd be screwed if we lost power. He was right. Apparently I'm the go-down-with-the-ship type.) We may be homeless and carless until Friday but that's the worst of it (unless, of course, we get robbed or are cars are gone or both). We've made lemonade of all of this so far. We're playing house at a hotel that offers a fine complimentary Continental Breakfast (where you can make your own waffles!) and a USA Today is under the door every morning. We may even hit the hotel gym after work today... It's a funny little life.

The one car thing is tough but since Dan works in Portsmouth (where we're staying) we can work it out pretty easily. I'm at the Portsmouth library right now waiting to get Dan before we pick up some take-out and head "home." I've never been to this library before and it's beautiful. Today I worked outside a coffee shop in the sun for two hours. Homelessness is becoming me.

Cut to two days from now when I'm throwing mini shampoo bottles at Dan and telling him I'm not made for this kind of life.

So far though, it's just the stuff of a good story.

This is how the rest of the state sees it. (The guy is standing right in front of our house which is the "gray house" he refers to (but they don't show it at first). Later on, when they show the skate park---which is right next door and where I cruise teenage boys---and then pan to the left, our house is shown. I believe the cooking school next door---the little red building---is a cover for a money laundering operation as I've never seen or smelled any cooking going down there. The mobile home park that also got evacuated is across town.)

And some more links:

Jason Schreiber, whose photographs are featured here (you can see our house in the background here, too), is a reporter who also interviewed us (and took pics of our particular rescue which I hope to get my hands on) but we didn't make the papes. Apparently my poking my head out of the door during the interview to ask "Do I have time to pee before we're saved?" wasn't fit to print.

Another

And anotha'

That's it.

P.S. This was in Portsmouth, not Exeter, but the point is: The Wet Bandits are out there.

Monday, March 15, 2010

Anybody have an ark?


Neither snow nor rain nor heat...nor flood?

There are actual waves splashing in my front yard. Our street and most of our driveway are already a foot under water and high tide isn’t ‘til noon. It’s trash day and we’re thinking of making a raft to sail our garbage bags to the end of the driveway. Dan is working from home today (the water would practically cover the tires of his VW bug) and the two of us are sitting back to back at our desks doing our thing and watching the water rise further and further up our driveway. (Our cars are presently sitting on higher ground though I’m not sure how long that will last.) It took us over three and a half hours to get back to NH last night (usually a two-hour drive) and as we sank into our couch after another week of traveling (he headed to Connecticut---his mom is home and doing better--- and then met me in RI) we wished it was a Saturday and that we could have an entire Sunday together. Or a Monday...

We haven’t said more than a few words to each other but I love that we’re home together on a rainy day. In hindsight, however, we probably should have gone grocery shopping last night as we planned but decided against since we were so tired. Dan has to pick up a prescription in town so we might put on our raincoats and swim to Rite Aid. We’ll use the stars to navigate. I’m kicking myself right now for not just buying a pair of Wellies any of the five million times in the last year that I held them in my hands at the store and thought about picking up a pair.



WE INTERRUPT THIS BLOG POST FOR AN IMPORTANT ANNOUNCEMENT



A fireman just came to our door to tell us that we could either stay in our apartment and be trapped for the next several days or they would come back at 1pm to take us out of here by raft. Apparently the river is more than rising. Our driveway now has a current. We're packing our bags and heading to a hotel. Another day's adventure. I'm not gonna lie, I just looked in the mirror to see if the outfit I'm wearing looks suitable for an evacuation. Is there a little black dress for such an occasion?

I hope to keep you posted. Pray for our cars and god speed.

There is a yard and a street under there.

Monday, March 8, 2010

I'd like to thank the Academy




Let me start by saying I really like Sandra Bullock. I fell in love with her in While You Were Sleeping, our love was deepened through Divine Secrets of the Ya-Ya Sisterhood, and it was even tested and ultimately endured Hope Floats. She seems down-to-earth and funny and kind, humble and principled and artistic. I like her so much that I would probably be an inappropriate hugger were our paths to cross, feeling like I know her as I do. You feel me? I like her.

Gushing preamble aside, I am somewhat disappointed that she won the Oscar for Best Actress.

Though I should probably tell you that I didn't see The Blind Side.

I did, however, see Precious and I have seen the clips and commercials of a dye-jobbed Bullock twanging sentimental cliches at a sad-eyed African-American boy and I just don't believe that whatever she did in the remaining 1 hour and 28 minutes of The Blind Side could have possibly measured up to what Gabourey Sidibe did in Precious: Based on the Novel Push by Sapphire. (I'll see The Blind Side soon and let you know for sure...)

Dan and I went to our little Music Hall movie theater on Saturday night to see Precious, a movie which I felt in equal measure deeply terrified and utterly compelled to see. The movie poster alone---the intense sadness and obvious torment on Gabourey Sidibe's face; her protruding, pursed frown---pained me. Aware as I was of the movie's themes of sexual and physical abuse, I worried that it would be one of those movies that puts me in a dark place from which it takes days to recover. (Documentary film The Greatest Silence: Rape in the Congo had just this effect.) I've always known that it's important to see such movies, but I'm only now realizing that the dark days afterword are important too as they are a part of my process (the process of processing, you see?) and they eventually dissipate. That said, Precious didn't put me in that place. Believe it or not, it's a story of hope and I encourage everyone to see it. Be warned, however, that it may likely be the most raw depiction of such abuse that you will have ever seen. (Whether the depiction of hope is realistic, I am hoping it is so.)

There is no wavering, however, on the fact that Gabourey Sidibe's acting is one of the most Oscar-worthy performances I have ever seen. I simply cannot understand how a 24-year-old woman (at filming) who had no experience other than slight roles in college plays---and who seems so bubbly and positive in interviews; a startling contrast to the wounded child she plays in the movie---managed such a feat. I suppose it's a case of when you got it, you got it, but, my God, that level of it is unparalleled.

Well, except for Meryl's it. You'll notice that I'm even championing Gabourey over Meryl---that's really saying something. (Though Meryl's Julie Child also seemed more Oscar-worthy than the 30 seconds I've seen of Bullock's performance...and, yes, I admit is completely ridiculous to make an assertion that someone is unworthy of an accolade without having viewed his/her complete work but...eh.) Last year I felt a similar disappointment when Kate Winslet---another actress whom I love---won over Meryl's performance in Doubt. That time I had seen both movies (Winslet won for The Reader) and I am still unsettled by the decision.

However, having said all this, I did enjoy Sandra Bullocks acceptance speech. I watched the Barbara Walters Oscar Special---I know---and heard Sandy (she has me call her Sandy) say how she didn't want to cry because her late mother used to scoff at those people who cried when they went up to accept awards. But while Bullock was witty and strong for most of it, she broke down when talking about her beloved mom, the woman who told her that "to be an artist you had to practice everyday." The funny, the vulnerable, the mom; it was a such a good speech that I've already dropped my grudge about the Oscar thing.

Needless to say, I'm one of those people who dig awards shows, particularly the Oscars. I pick my favorite dress of the night. (Sarah Jessica Parker, though I didn't love the hair.) I revel in the particular brand of discomfort that comes from seeing people in the crowning moment of their career get cut off mid-sentence by an overly-dramatic orchestral arrangement. (Did you see the crazy red-head lady cut off the director of Music by Prudence when it won for Best Documentary Short? Youtube it immediately.) And I faux-mourn the genius of such actresses as Britney Murphy during the In Memoriam portion of the evening. (Glad to see MJ get some credit there though; for my money The Wiz is is of the same cinematic ilk as Schindler's List.)

Dan and I make an event out of Oscar night every year. Last year we even sat through a day-long Oscar event at AMC Theaters which showcased all five Best Picture nominees. This year, not so much. We did get 2010 winner The Hurt Locker through Netflix and it's a solidly great movie. It tells the story of a three-man bomb disposal unit in Iraq and my only complaint was that I wanted the the story to go on and on. I wanted to know what happened next and then after that and then two years from then. I hardly think they'll be making a Hurt Locker II but I'd watch it.

I know the gross excess of something like the Oscars flies in the face of everything a film like The Hurt Locker is trying to show us about the wars that are happening this very minute, but movies are also about escapism and dreams and that's what the Oscars represent to me.

Hearing words like those of Best Original Score winner Michael Giacchino, who won for Up, is exactly why I still watch the Oscars.

"...I know there are kids out there that don't have that support system so if you're out there and you're listening, listen to me: If you want to be creative, get out there and do it. It's not a waste of time. Do it..."

I watch the Oscars and that part of me that believes that I'll one day be on that stage accepting such an award comes alive. I absolutely remember being at a high school keg party---horny teenagers with red cups everywhere---and tuning out all that was going on around me so that I could zoom in on a TV that was across the room to watch the Primetime Emmys. (ER was big that year.) (I was going to save that story for my acceptance speech---it would have a better, gushier version---but I'm rethinking it now.)

Letting the big dreams have the stage, even for just a night, invigorates and restores me. It allows for inspiration. And that's not a waste of time, either.

Thursday, March 4, 2010

All hail the kale.




Home for two nights but heading back down to RI today. Katie and the nugget leave Monday and I need another squeeze of that kid's chubby thighs to tide me over 'til their next visit. Dan and I spent these last two nights binging on food (fajitas, Thai, Jerry and his friend Ben), American Idol (Dreads and Shera are my early picks) and our other TIVOed faves (Survivor All Stars? yes, please). Sometimes I need TV to swallow me and the last couple of nights I willingly hurled myself down the chute. Now I'm ready to get back in the car.

Last week (though, you should know it seems like eons ago; time is an abstract concept lately) we found out that my mom's cancer is non-small cell lung cancer (NSCLC). This is good news. (I'll take it where I can get it). Non-small cell, as opposed to small cell (and, yes, this is the correct medical terminology, prompting my sister-in-law to joke that she has a "non-small butt") spreads more slowly and is the type in which surgery---a curative measure---is a feasible option. Score one, mom.

Our hope was to have the lung and the adrenal gland taken out at the same time. "One in the trunk, one in the hood," I joked regarding the fact that there would actually be two surgeons---the thoracic surgeon and the urologist---operating on her at the same time in this scenario. But Tuesday we learned that rather than operating right away, my mom will undergo a couple of rounds of chemotherapy first. I'll consider this a draw in the Gig (pronounced Jeege...short for Gigi) versus cancer Battle Royale because I'm not yet sure how this will pan out. (Duh.) The idea is that the chemo will shrink the tumors and though she will definitely lose the adrenal gland (which the urologist assured me will have no effect since we have two; God's a planner), it's possible that if the lung tumor shrinks enough, my mom could have just a lobe removed (lobectomy) versus losing the entire lung (pneumonectomy).

By the way, if you google pneumonectomy, the first video result that comes up features my mom's actual thoracic surgeon. That's the guy we've been seeing and with whom we were set up (as if we're dating now) by a friend of my mom's (god bless her) who works as a cancer nurse at Brigham and Women's Hospital. My dad since found an article about how he operated on Ted Kennedy's daughter, Kara. That felt good to learn.

So, the story is that my mom will do two to three chemo treatments and then we'll head back to Boston in a few months to discuss surgery. I'll be honest, this wasn't the news I wanted to hear. I want the cancer out and the traitorous lung to go with it. Also, we worry about the effects of the chemo on my mom's immune system and the possibility of it weakening her before surgery. But, doing preoperative chemo will potentially kill any free-floating cancer cells in her body thus preventing its spread and we also can't discount the possibility that this could mean losing only part of her lung versus the whole thing. Perks, I'd say.

So, the next chapter begins. Readying for chemo. My mom has contacted an oncologist and I'm sure, like everything else so far, things will start moving quickly. As is my custom during such times, I bought a book: The Cancer-Fighting Kitchen by Rebecca Katz with Mat Edelson. I spent some time in a Portsmouth book shop yesterday thumbing through it and it's a pretty amazing cookbook. Not only does it provide a bunch of recipes filled with all the foods and spices that fight inflammation and strengthen your immune system (my goals for my mom in these next few months) but it also explains when certain meals should be eaten. It gives suggestions for super immune boosting meals that are ideal for the week before chemo and then also provides food and herbal suggestions for staving off nausea, etc. I was thinking of sending out some of the recipes to friends and family so if anyone is looking to make her something to eat they'll have some good ideas. (This is an idea from the book. Sounds pushy, I know, but I'll be throwing out any refined sugars or white flour products---big causes of inflammation---that cross my path.)

According to everything I've read, healthy foods fight the inflammation that causes cancer (and most other western illnesses for that matter). I'm about 40 pages into David Servan-Schreiber's Anti-Cancer: A New Way of Life. (Coping much?) The funny thing is that I read Servan-Schreiber's The Instinct to Heal: Curing Stress, Anxiety and Depression Without Drugs and Without Talk Therapy this past fall and raved about what an interesting book it was and its impact on me in terms of understanding the importance of physical health on mental health (or is it vice versa?). Turns out the guy has been beating brain cancer's ass for over 15 years through nutrition, excercise, mindset, etc. (This is what I've gathered in the first 40 pages, at least.) Katie (who I turned onto Instinct) bought Anti-Cancer (which I stole from her) before my mom was even diagnosed. Coincidence? Fuh real?

Hearing the news about the postponement of surgery was one of the lower moments we've endured so far (though, as I said, there are differing theories as to whether pre-operative or post-operative chemo serves a person best). My mom actually seemed frightened which was the hardest part to see. My dad, too. There are few things more disconcerting than fear in your parents' eyes (particularly when they have medical backgrounds).

But this was already days ago and with the intensity building as it is, days seem like years. We've all switched gears and are moving forward in faith and courage. My mom texted me last night about the Omega-3 fatty acids in the salmon she was having for dinner---now that's a tumor-busting attitude.

In regard to chemo's potential effect on cancer, the thoracic surgeon said, "Sometimes it shrinks like snow in the sun."

Sounds good to me. Spring is only 16 days away.

Monday, March 1, 2010

Paper or plastic?




I am in the bedroom where I slept every night as a kid, sitting at the pink and white desk I got as a Christmas gift when I was 10-years old. I had always wanted a desk of my own to write at---even then I was romanticizing this being a writer business---and when I walked down and saw this beauty with its pink drawers and white handles filled with rulers and pencil holders and the attached shelving unit that sits on top of it stacked with Christmas presents, I gasped. My very own desk. My very own desk with its flower-bordered desk pad and matching note pad and one of those pen holders that looks all old-fashioned and grown up with the pen standing almost vertically in its stand. My very own desk where I could write letters and stories and do my homework. My very own desk where I would undoubtedly spend countless evening "working" under the glow of a desk lamp. I couldn't believe it was mine.

Of course, I don't remember writing at it all that much as a kid.


I wrote this (honestly, at that desk) two days ago, thinking I would be able to finish and post a blog entry at some point that day. I thought I'd get many things done in these past five days I've spent here in RI---blogging, yoga, coffee with friends---but, of course, I have done none of those things. Except for a hospital trip on Thursday, I haven't even left my parents' house to go further than Clements' Market, the Portsmouth, RI equivalent of a town square. (Today---during my second trip there in three days---I shopped along side my elementary school nurse, the very woman who first taught me about "developing" and supplied me with a pink plastic kit stuffed with maxi pads and panty liners.)

It was a bit of a heartbreak to come home from NH one year and see that Clements' had moved a lot over from its original location (change is never easy) but it expanded into a bright, beautiful market, so booming with business that it now has its own stoplight at the parking lot entrance; this is the big-time in Portsmouth commerce. Not only is Clements' a perfect symbol of small town life and community (the checkout lanes are even named after Portsmouth streets), but it also encompasses all that the words coming home conjure and, in some ways, mean to me.

This is the place from which every homemade meal of my childhood was born. This is where I rode my first conveyor belt at the checkout counter. This is where my mom has earned her points every year towards a free 22-pound Thanksgiving turkey to feed the family. This is the first spot to which I illegally drove my parents' car (on some errand that one of my sister's swindled me into doing...and to which I agreed for obvious reasons). I can actually remember keeping the keys out on the counter rather than hiding them in my pocket, enjoying the maturity that I was sure just having keys chain branded me with. This is where we ran school car washes and set up tables for bake sales. This is where Cherie and I darted from aisle to aisle, hiding from each other and playing games while my mom shopped for what seemed like hours, striking up conversations with whichever friend or acquaintance she encountered at each turn of the cart. This is where I would see teachers from school or friends from dance class. This is where my mom brought me every last week in April to pick out my "birthday cereal"---the only time of the year that we were allowed to have the ultra-sugary version of this breakfast food. (I was always a Lucky Charms girl, enamored as I was buy all the marshmallow trinkets. Cherie opted for Fruity Pebbles---a much better choice taste-wise.)

This is also where Jerry, head of Natural and Specialty Foods, found me the other day and asked, "How's mom doing?" (As I told Molly who was shopping with me, I've known Jerry since I was close to her age.)

During this same shopping trip I ran into a longtime friend of my mom's (who lives just down the street and whose daughter has been a best friend of one of my sister's since kindergarten) and she started to cry as she hugged me hello. She caught herself by surprise with these tears and tried to hold them back in part, I'm sure, for our sake (Katie and Savvy were there too), but I was so grateful for the honesty of her emotion.

Though, kind as these interactions were, I was struck by the fact that my mom had cancer in a world outside the intimacy of the hospital visits with my parents and the phone calls amongst my siblings (and even outside this blog). My mom has cancer at Clements' Market.

A few minutes later, apart from my shopping posse, I had to take a moment to brace myself, standing with my hand against my face, accepting that what had just occurred was real life and not something out of a Meryl Streep movie , which is exactly what it felt like. In some ways, I guess life is feeling more and more like the movies lately. Perhaps this is the stuff of focus and perspective, frame and angle.

I will likely be spending more time at Clements' Market in these coming months than I have in years. Rounding the islands of produce, I stocked the cart with broccoli, cauliflower, strawberries and more---mainstays of the anti-cancer diet. In the endless quest for things I can do at this wholly out-of-my-hands time, I am hoping to keep my parents' refrigerator stocked with such things, at least while I'm around to do so. ("And I don't want to find anything in your napkin," I told my mom last night after serving her a portion of broccoli that I wouldn't wish on my worst enemy.)

There have been years when I've wanted to avoid Clements' Market; times when my life wasn't looking as I hoped it would and I just didn't feel like explaining this to a kid I once had English class with, or worse, his mother.

But now, for reasons I'm still trying to understand, I am feeling less concerned with things like this and more appreciative of the familiar faces.

A surprise to me, this side of coming home.