Thursday, October 14, 2010

Today's post is brought to you by the letter B



I keep my phone turned on and by my bed when I'm in Rhode Island in anticipation of an "I've fallen and I can't get up" call from my mom who's on the other side of the house.


I'm thinking of investing in Walkie Talkies; I would be sleeping right now had my sister Becky not texted me shortly before 6am to check on my mom. She has been forgiven and now given credit for supplying me with the handful of minutes (that's not an expression) I needed to scrape together today to update.

Most important, I still have a virgin colon (and am resisting all sorts of jokes there...).

I did end up canceling the appointment but not because you all frightened me with your tales of fecal woe (which you did!). Dan's uncle, a man of legend in his family and community (as it sounds from the turnout at the funeral) passed away this past Friday night and I canceled my appointment in order to attend the funeral. Though it is always sad to lose one of the world's great souls, his death was not unexpected and hopefully brought the man some relief as he was in his 80s and had been ill for a while. Dan said the funeral was a great tribute and also quite the service with Archbishop of Connecticut delivering the mass as Dan's uncle was a priest. Though I wish I could have been there, I did not end up attending as my mom has been struggling more than ever these past few days and it wasn't the time to leave her.

As always, she is fighting the battle of pain and vomiting, both of which are stripping her of strength and energy (not to mention joy). We are trying to find the right combination of medications to alleviate her suffering but have learned that it's not as easy as simply taking a pill as what works for one person does not work for another. Also, the body gets used to pain meds pretty quickly such that the the dosage needs constant evaluating and upping. For my mom, who has always been weary of over-medicating, this is an adjustment. The other part of the balancing act is finding the medication and dose that will stop the pain but also keep my mom's brain sharp and aware and here with us. So, that's the journey. This morning, as every other, I wake up hoping that today she has a better day.

Last night she did finally find relief from the pain but it wasn't until 8pm (and after a bout of vomiting). As soon as she finds relief, her face changes. I can actually see her eyes shift from strain to warmth and she is able to smile which the pain usually prevents (a robbery felt by everyone). I felt sad that the best part of her day was at its ending, but grateful it came and I am hopeful that it carried her through the night. That's the start of my usual line of morning questions I ask when I go to greet her up in her bedroom:

How was the night?

Did you throw up?

How are you feeling this morning?

Can you eat anything?

Where's the pain?

And so on. And throughout the day this same line of questions cycles around as we try to help her find comfort as the hours go on. It's been a tough few days and I can't say otherwise. Still, there have been moments when my sisters and I have hung out on her bed, or sat three of us on the couch, my mom in the middle, watching Lifetime movies and I don't have to wait until later to cherish them.

While I obviously don't want my mom to suffer, I said to her the other night, "I feel kind of selfish because I want you to be here."

She said, "I want to be here too. We want the same thing...And when I don't want to be here and you want me to be here, that's okay too."

Profound moments like this are happening every day now. I watched my mom say goodbye to her visiting sisters, most of whom live out of state, and recognized that this goodbye was the hardest any of them have ever had to say.

It's intense, to say the least.

So, now my handful of morning has passed and it's time to see how Gig is doing today...

Sometimes I just shout it out midday while looking up at the sky, arms pleading, "Give her a break today, will ya?"

Feel free to join me.

18 comments:

Jen Vidotto said...

Tears. A whole shitload of tears.
Tears for the pain.Tears for the vomiting.Tears for the sister's goodbyes.Okay you probably get my point.
It is so unfair!
I love you guys all so much!

ellieb said...

Ditto Jen....ditto ditto ditto...
FUCK-PLEASE GIVE HER A BREAK TODAY!!! I am shouting it from the mountaintops...xxxooo

Margaret said...

I don't think anyone who reads your post won't cry. I hate that your Mom has to go through this, I hate that your family has to go through this. I hope and pray today she has a good day filled with smiles and I hope she has plenty more.

Matthew said...

Yes, I had the tears too. You are brave women. Very very brave. I AM PRAYING FOR THE BREAK!!

Give my best to Dan.

Anonymous said...

Jen and I are twins so we share the same thoughts. Except that she is better at communicating them while in full fledge tears. So I am stealing her words as well. I just wish that there was something that I could do....I feel so useless. I just wish that we could find that magic drug to make her better. ALL BETTER!!!! I love you all!!!!!
Love Ame

Anonymous said...

Lo, You are doing everything you can and it's a lot! Wish I could do more...along with everyone else. My heat goes out to you and the fam. Wishing for pain free days and yes, smiles.
-Mart

Rob said...

Thanks for keeping us updated on GiG.

I simply don't know what else to say other than that she's lucky to have you all on her side.

ALLISON said...

"she is able to smile which the pain usually prevents (a robbery felt by everyone)" Laura, I love this line so much because your mom's smile is so great, it truly is a "robbery" not to see it all the time. Love you.

Unknown said...

Lots of tears here too. Between the 2 of us, we are going through lots of tissues.
Joe said he wants to give Gig one of his lungs right now. He seriously would. Any of us would. We'd do anything for Gig and for you guys.
Big hugs to you guys.
Teach

Talk2mrsh said...

No words for this. Love you.

becky.breslin said...

the pain part of this is the worst to watch....awful. Really, the whole thing is awful.

Lo-sorry for waking you up, but I know everyone is appreciative of the update even if the update sucks.

Lori D. said...

So Lola...I figured I should come out of hiding. What I mean by that is that I work with your Dad and obviously you don't know me from adam, but I feel like I know your family. My name is Lori, but your Dad calls me Lor (which makes me smile because those that love me most always call me that) and he insists I call him Barry (however I prefer old man and for some reason he seems to like it). Anyway, I am a 29 year old nurse practitioner that met your Dad when I started at Charlton over two years ago. The running joke that Barry and I have always shared is that I am the honorary brunette 6th daughter. I mean with that many girls in the family why not squeeze in one more, he obviously is only capable of X chromosomes anyway? Basically, I am the stand-in when he’s at work that entertains him until he can get back to the redheads and blondes that he adores. Your Dad is like a Dad away from home for me because he has always been so kind and loving and frankly when we work together it is like two 20 somethings working...except one has poor hearing.

Honestly, I started reading your blog over the last two years because your Dad would be laughing out loud at work reading it or going on and on about it with such pride and admiration telling me that “ya just gotta read this shit, it’s fabulous!” As a self-proclaimed writer myself I was so interested to read your blog and it further heightened my interest when Barry kept saying that he could imagine you and I being friends because of our similar sense of humor (hook, line, sinker... I started reading). I remember specifically saying to him after reading the first few entries ever..."This is exactly the writing I love to read...WHEN she publishes I will honestly read whatever she writes, she could probably make the dictionary interesting!

(Had to cut it in half b/c of my long-windedness).

Lori D. said...

Then obviously your blog changed it's direction over the course of time and I must say that through your family's pain, angst and strength written so eloquently, with such awe inspiring truth and incredible wit...I have been humbled by your words. I also felt that I must ask permission to continue reading due to my lack of knowing you all, however your Dad encouraged me to keep reading and following your family's story. I have been so grateful for this blog so that I don't have to continually ask your Dad about status updates, I could merely give him a hug and say, I have been reading, I already know...I think your blog is undeniably special in so many ways that you do not even realize. For instance, last night I worked the evening shift with your Dad and when he pulled out a picture of "his girls" I began to point to each of you and say..."that's the pee-er, the writer, the camerawoman during the "double cartwheel debacle" and the one holding the baby...I am sure you get my point. I don't even know you Lola, your sister's or your incredible Mom, yet I luckily have had the privilege to work with your Dad and through he and your blog I have been invited into your family. At times I have felt like a bit of a voyeur, however your Dad always told me too "keep reading Lor" when he'd report that you had posted something witty and/or poignant. So I figured I would finally come to the forefront, express my sincere love for your Dad which extends to your family, but also addresses my anger and disgust at this disease that has put you all through hell. However, long before any x-rays, CAT scans or diagnoses, your Dad told me incredible stories of how your parents met, how he wooed her over hospital loudspeakers and carrying an umbrella for her in the rain...I relished all those stories and was enchanted with their love story. What I love most about it all is that it did not take tragedy for your Dad to tell these stories or speak those words of love about your Mom. She was in the essence of his everyday cancer or no cancer...when he's at work, his heart was always at home, "with his girl." However, I want you to realize Lola that through it all--your hilarity, meaningful words and grace that you exhibit through this time has been such a gift to your family, your friends and now has even extended to this stranger.

becky.breslin said...

wow... I don't even know what to say...I just read your note, Lor, and am laying in my old bedroom at my parents house here to see my mom...crying while reading your entry. 1st, you should know...you share Lola's gift for writing...so I encourage you to pursue your own writing goals because your note was beautifully written...and seriously moved me...my dad is an amazing guy and he does love my mom deeply...my heart breaks for him throughout this whole thing...i don't know how I could or would handle watching my husband (the love of my life) suffering on a daily basis... it's just an awful thing... My mom is a special person...and she has lots of good people in her camp-cheering her on...her friends, family, and we will take any newcomers into the equation so, I know you will hear this from Lola and I know I speak for my whole family when I say, you are always welcome to join us in this journey... I wish we weren't on this journey and wish we were still laughing about Lola's neighbor who she stalked, but here we are.... xoxo -the Pee-er :)

Matthew said...

Welcome Lor!! LOVING LOR!!!

xoxo CROTCH IN THE FACE DOUBLE CARTWHEELER!

Anonymous said...

sobbed reading this last night...think it was happy tears. Wow, the power of sharing is profound.
-Mart

ellieb said...

Welcome to the family Lor, your words and story are profoundly moving--as are Lola's...must be kindred souls. I am overwhelmed with so many emotions~but one thing I am sure of~it is Gigi's "larger than life" (as quoted by Laura Foss) presence that brings on such inspiration...for that, I am grateful.
the adopted neighbor :) ellie

Anonymous said...

I must start by saying, Lor, that Lola belongs to me. You see, we have yet to meet but I truly feel we are meant to be together. So, paws off. I know she thinks she was in love with the neighbor....but c'mon. I follow that with, your note was so incredibly touching and is such a true testament to what this family has become to so many (and I have only met one of the bunch thus far).

Becs & Lo - my love to you girlies and the rest of the tribe. I worry for you every day.
xoxoxo
BFYNM